His mother, 42-year-old Zhyldyz Kozubekova, shares the difficulties she faced when she learned about her son's diagnosis. "To speak of the challenges of life would not be an exaggeration. The first trial began with Bakmurat's birth. I faced accusations for giving birth to a sick child, and my first marriage fell apart. Many advised me to give up my son and send him to a boarding school, but I couldn't do that. His smile filled my world with meaning," she shares.
Raising Bakmurat became possible thanks to the support of his grandmother and older brother. For the first seven years of his life, he did not speak and did not get out of bed. However, everything changed at the age of seven when he first touched the Quran. "He began to read, and after that, he stood on his feet. This gave us hope. I always believed he would be able to walk," says Zhyldyz.
Today, Bakmurat moves confidently with the help of a walker and can stand for hours. His mother continues to hope that he will one day walk independently. "We work on this every day, and it requires a lot of effort," she notes.
When Zhyldyz tried to enroll her son in a school in Talas, no educational institution accepted him. So she took Bakmurat to a school in the village of Ak-Döbö [Ak-Dobo] in the Bakai-Ata district. "There, we were warmly welcomed. He studies remotely, receives assignments, and once a week we take a taxi to classes. My second husband always supports Bakmurat," she shares.
Bakmurat speaks Russian and English fluently. Every year, he reaches the republican stage of English language Olympiads, taking fourth place. He studies the Quran and regularly performs prayers. "In the summer, we go to the mosque twice a day, and in the winter — once. He often tells me: 'Mom, pray for me, your prayers are accepted,'" the woman adds.
Since the first grade, Bakmurat has been an honor student, and his photo appears annually on the "Honor Board." He is very goal-oriented and disciplined, his mother says.
Bakmurat's dream is to create a film about his life to inspire those who have lost hope. He is also interested in IT and is already working on creating animated films.
Three years ago, Bakmurat published a book about his life. "I didn't even know about it. He just said: 'Mom, I wrote a book.' In it, he talked about how he sees his life and what difficulties he overcomes. We helped him publish this book," Zhyldyz shares.
The family also has a five-year-old sister, whom Bakmurat cares for very much. His dream is to perform Umrah [minor pilgrimage] and in the future study at a madrasa to become a theologian-imam.
Bakmurat says he is deeply grateful to his parents for their love and support. "If it is the will of the Almighty, when I can walk independently, I want to take my parents on a pilgrimage. My mom has always been there, she has endured all the hardships, spent sleepless nights, and gave me hope," he recounts.
Bakmurat also expresses his thoughts in Russian and writes poetry.
Here is one of his poems
Children are a gift to us, children are light,
Allah entrusted this treasure.
And how can we answer,
When they stand before Him in a row?
We teach them not to gold and lies,
But to His wise word.
So that in a pure heart they can live
And the light of faith and kindness of all.
Not only with words — but with deeds
We open faith to children.
Let them see the truth with their eyes,
Let them accept us as an example.
Prayer, Quran, and every breath
Let it resonate in children's souls.
So that the world cannot lead them astray,
And their hearts will reach the Lord.
