“Vaccination against measles starts at one year, and he got sick at six months. I was aware of the possible complications, but he recovered quickly and continued to develop. We were confident that all the difficulties were behind us and didn’t even suspect that there could be long-term consequences,” shares Meerim, Alinur's mother.
The first signs of the disease appeared in 2023. A few days before his fifth birthday, the boy began complaining of severe headaches. Currently, the illness has deprived him of the ability to speak.
“We ended up in the neurology department of the 3rd Children's Hospital, where he was diagnosed with 'epilepsy' due to brain swelling. During treatment, his arms and legs began to fail. In the end, we spent more than a month in the hospital, but the doctors couldn’t help,” the mother recounts.
Alinur contracted measles at six months. The consequence of the virus was a rare brain disease.
At first, Alinur's parents did not realize that his condition was related to the measles he had. They consulted many specialists in Bishkek before heading to India.
“Doctors held consultations, but no one took on his treatment. Realizing that we wouldn’t get help here, we turned to foreign doctors and flew to India, where a precise diagnosis was finally established, and adequate treatment began,” Meerim explains.
For two years, Alinur has been receiving treatment. His family can only dream of him living without pain and being able to regain his speech and motor functions.
“It’s unbearable. I gave birth to a healthy boy who developed faster than his peers. He ran, jumped, and talked non-stop. Now he is confined to bed. This illness has destroyed his life and our family,” the mother says with tears.
Alinur had measles at six months. The consequence of the virus is a rare brain disease.
Monthly expenses for treatment and rehabilitation amount to about $1,500. Alinur's father works as a taxi driver, while his mother cannot work as she needs to provide constant care for her son. As a personal assistant to a person with a disability, she receives about 8,000 soms from the government, and Alinur receives the same amount due to his diagnosis.
“We sold everything we could to help our son. We started a fundraising campaign when there was nothing left to sell and no one to turn to. Therefore, I hope for the understanding of Kyrgyzstani people. We need your help,” the mother says with hope.
I really want my son to live and not know pain.
